About
Medical research often requires access to sensitive personal health data. According to GDPR, such access is only possible under certain legal bases, such as consent. Verifiable and secure management of health data access is thus essential for promoting public trust in organizations that manage sensitive health data, for ensuring legal compliance, as well as for motivating patients to participate in research projects and allow access to their health data. In this work, we advocate a blockchain-based approach for verifiable management of sensitive health data access for medical research. We present the life cycle of a medical research project w.r.t. health data access, by identifying the involved entities and their interactions. Important requirements for verifiable management of health data
Selected publications
- Scientific articles and book chapters
- Arbabi, Mohammad Salar; Conceiçao, Arlindo Flavio Da; Garrett, Thiago; Nygård, Jan Franz & Vitenberg, Roman (2023). Tracking Decisions about Granting Access to Health Data: Application Analysis and Requirements, 2023 IEEE International Conference on Decentralized Applications and Infrastructures (DAPPS). IEEE (Institute of Electrical and Electronics Engineers). ISSN 9798350335354. p. 1–6. doi: 10.1109/DAPPS57946.2023.00010. Full text in Research Archive Show summary Medical research often requires access to sensitive personal health data. According to GDPR, such access is only possible under certain legal bases, such as consent. Verifiable and secure management of health data access is thus essential for promoting public trust in organizations that manage sensitive health data, for ensuring legal compliance, as well as for motivating patients to participate in research projects and allow access to their health data. In this work, we advocate a blockchain-based approach for verifiable management of sensitive health data access for medical research. We present the life cycle of a medical research project w.r.t. health data access, by identifying the involved entities and their interactions. Important requirements for verifiable management of health data access are also identified. We believe that the advocated approach will contribute to satisfying the identified requirements in the context of the defined life cycle.
- Arbabi, Mohammad Salar; Lal, Chhagan; Veeraragavan, Narasimha Raghavan; Marijan, Dusica; Nygård, Jan Franz & Vitenberg, Roman (2022). A Survey on Blockchain for Healthcare: Challenges, Benefits, and Future Directions. IEEE Communications Surveys and Tutorials. 25(1), p. 386–424. doi: 10.1109/COMST.2022.3224644. Full text in Research Archive
- Arbabi, Mohammad Salar & Shajari, Mehdi (2020). Decentralized and secure delivery network of iot update files based on ethereum smart contracts and blockchain technology. CASCON '19 Proceedings of the 29th Annual International Conference on Computer Science and Software Engineering. Full text in Research Archive
Data verified 9/6/2026Source